Did you know our government designated a day called Rare Disease Day on Feb. 28. It’s the sixth year the U.S. has participated. The state of Washington already has the heart, soul and common sense about Rare Disease Day.
I know, I’ve personally experienced it, because, within six months of my move from Arizona to Tumwater, my third child was diagnosed with a rare disease called GM1 Gangliosidosis. Her memorial video is uploaded to YouTube. Everyone seemed to wrap their arms around me during a distressing time. Family, teachers, friends, children, neighbors, strangers all participated in providing care for my child and myself. It’s as simple as a smile. A friendly smile alleviated stress and made my days a little better.
Now I’m in love with a whole new set of individuals and the majority of them are born and raised in Washington. An intentional and special smile on Rare Disease Day may momentarily take away hurt from a family suffering from a rare disease.